I think we have to beware the many new treatments that come on the market. The fact is that, out there, we come across so many of those wonder drugs which promise great results but which are developed and financed by companies with shareholders who, of course, want to profit from their investment.
The reality is that these companies tend to be reluctant to share the results of their research and testing lest other companies benefit. It is only natural, since the structure supporting these systems is based on self-enrichment.
A cynical observation might be that most “cures” seem to benefit the sufferers of relapse-remit multiple sclerosis and, coincidentally, those suffering from relapse-remit MS tend to be recently diagnosed and perhaps more gullible to so-called cures.
I am at the secondary progressive stage and, at 68 my naturally-acquired cynicism leads me to support the more sedentary, global review of cures like that of NICE.
The NICE organisation has nothing to gain financially and, in my opinion, the sooner all pharmaceutical companies devise a universal view of the MS phenomenon, the better. Co-operatives of pharmaceuticals could work together on specific diseases and reap their profits according to their contributions.
On this page relating to latest treatments for relapse remit and progressive multiple sclerosis, I have to mention the alternative of meditation.
Multiple Sclerosis is such a variable condition that what works for thousands of patients may not work for you and vice versa. We are all individuals; we will have contracted the disease via different routes; our MS will be at different stages of development and so on.
Meditation did not work for me which means only that it did not work for me. The type of meditation Sue and I tried was Transcendental Meditation. I also had a go at Yoga Nedra. They both need single-mindedness and concentration.
Now, what was I saying? Oh yes. I just found I could not concentrate long enough even to remember my mantra. In fact, while everyone else was getting deeper and deeper into transcendentalism, I suffered from a bout of uncontrollable giggling. I made my excuses and left before I spoilt it for the others. But the giggling itself had been good.
P.S. I have just heard on the 9 a.m. News (09 Jan 2009) that scientists have found a method of directing injected stem cells to any damaged part of the central nervous system where they will do their repair work. This, they say, will have massive implications for people with heart problems, even broken limbs and, I presume, damaged myelin.. The scientists project another ten years of research before any drugs are available.
I suppose people like me will be at the end of the queue, but great news for the younger ones!
If you'd like to chat,
or by telephone on 01253-702102
I am particularly interested in your thoughts and ideas on aids for the disabled
in public life, like my free standing grab-bar.
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